For Parents and Caregivers of Loved Ones of All Ages Living With Lennox-Gastaut Syndrome (LGS)

Canine Assistants is one of several organizations that trains and matches service dogs, including seizure-response dogs, with families. Their dogs:

• Are trained to stay next to their companion during seizures
• Have been taught to get help, if it's available
• Can sometimes predict and react to seizures before they even happen

When you have a child with LGS, the addition of safety equipment can be a game changer. Some of these resources can be expensive, but don’t let this discourage you. The Elevate Patient Assistance Program from the LGS Foundation provides financial assistance so those with LGS can have necessary medical equipment that isn’t covered through insurance, such as wheelchairs, helmets, communication equipment, and seizure alert devices.

Mealtime can be stressful for any caregiver, let alone one caring for a loved one with LGS. One caregiver in our community swears by using nap times to prep ingredients so there is less work to do once everyone is hungry. She also said that creating a weekly meal plan makes her feel more in control when dinnertime comes around. If grocery shopping is an added challenge, consider ordering groceries to your house or subscribing to a meal-kit service that comes with pre-portioned ingredients and step-by-step recipes.