Inspiring Families With Lennox-Gastaut Syndrome (LGS) at Every Stage of the Journey

Shine Forward With LGS is an online destination that celebrates the strength of the LGS community. We’re here to provide support to families with loved ones of all ages living with LGS, so you feel heard and prepared to confidently take on each day.

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Allison, 21, with her mom and dad

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Allison, 21, with her mom and dad

Liam, 4, with his dad

New to LGS?

Finding out your loved one has LGS is not an easy journey. It can be a winding road that involves multiple doctors, an unknown diagnosis, and plenty of patience. However, you can take comfort in knowing you have an entire community behind you every step of the way.

Liam, 4, with his dad

 

Resources to Get Started

Welcome Kit From the LGS Foundation

Welcome kits are available, at no charge, filled with all kinds of useful materials for families learning how to navigate LGS. To request your kit, click here.

LGS Foundation Doctor and Care Center Locator

Finding a doctor who is knowledgeable about LGS is invaluable. Here's a tool to help find a reputable one in your area: click here.

Support for Caregivers From Caregivers

Whether you want to learn about the impact of LGS, best support the other children in your family, get life tips and activities for kids of all ages, or simply find ways to take better care of yourself, this website, Shine Forward With LGS, can serve as your go-to guide.

Aushay, 13, with his mom and dad